Nobody heard him, the dead man, But still he lay moaning: I was much further out than you thought And not waving but drowning.
Poor chap, he always loved larking And now he’s dead It must have been too cold for him his heart gave way, They said.
Oh, no no no, it was too cold always (Still the dead one lay moaning) I was much too far out all my life And not waving but drowning.
Just watched Queen’s Gambit. I am in love and resonate with so much of it… even if it slightly brings me shame. But change is possible, and it’s left me empowered. Just read an article that pointed out how the show snuck in the work of female artists who tended to be overshadowed by men. This poem by Stevie Smith is one of them. Super relate.
For so much of my life I felt like I told the people around me that I was drowning, repeatedly, but everyone just said I was so happy and bubbly all the time. They wanted to see in me what they chose to see for themselves. What served them the best.
I am so grateful to have found a few wonderful people, including my husband, who were able to actually hear me. But others aren’t as lucky…
It’s important to listen.
It’s also important to express how you feel. Asking for help increases the chances of finding those who will listen.
I feel like I’ve had so many realizations and breakthroughs lately. I was excited for the future… dead set on making my plans work, making my goals happen. I can tell Eddy is worried about me actually making money since I quit my job. I’m also really worried about my mom. I HAVE to make money somehow. I know there’s really no going back, and I HAVE to figure this out at all costs. I’ve been working so hard to shift my mindset and how I view mental health in general, which I THOUGHT was getting me somewhere. But it really really sucks how all that seems to just go out the window when I wake up depressed. Like the day is fucking DONE before it even started. The overwhelming weight of the pressure of life just comes back and I can’t help but want to give it all up…just melt away…
I never expect it either… I’ve been using this Daylio app to track my moods, which has been fantastic. I suppose it’s working, but all it really shows me is, whenever I’m feeling great for an extended period of time, whenever I’m feeling functional, it’s only a matter of time till I drop. And that terrifies me. Knowing that one day, when I least expect it, depression will go SURPRISE, like a creepy ass jack in the box. But maybe that’s part of the issue… will I ever just be able to ACCEPT this part of myself? Rather than fearing it? Rather than dreading it? Will I be able to trust myself enough to know that, whenever I hit these lows, that it’s inevitable for me to bounce back up at SOME POINT in the future? I gotta keep the hope alive somehow…
Of course, highs and lows are normal states of humanity… which makes me feel even worse whenever I’m low because I can’t help but feel that I’m the only one in the world who can’t handle it. When I feel this way, all I want to do is run. All I want to do is disappear. Eddy always reminds me that he has stuff going on with him too… and it hurts because I always feel like I can’t be there for anyone when I’m like this. Much less him. He must feel so alone so much of the time, which is why he always has to have some kind of noisy show going on. ALL THE FUCKING TIME. And all I keep thinking is “THERE’S ALWAYS SO MUCH NOISE IN THIS GODDAMN HOUSE” rather than “I hope Eddy is doing ok…” It’s even WORSE because whenever I’m depressed, he thinks that it’s HIS fault and thinks I hate him! Sigh.
I hate the feeling of forcing things to revolve around me, always. It’s absolutely disgusting.
I have so many plans. I want to be an artist, but I feel so visually lost. Absolutely crippled. All I can do is use my words, and poorly. I’m so sick of it. I just wrote in my sketchbook today “TALK LESS, DRAW MORE” and already, I’m doing the opposite. One of my friends introduced me to this artist yesterday, Moonassi. I am blown away. I want to do things like this. When will I be able to get a hold of myself enough to create something that’s not just SCRIBBLES?!?!?! I have absolutely NO CONTROL. NO FINESSE. IT MAKES ME WANNA FUCKING BARF.
It’s a horrific realization to know that I always expect someone else to do things for me. That’s the reason why I haven’t created anything worthwhile. But if I expect someone else to do it for me, then what’s the point? It wouldn’t be me. I AM SO SICK OF DUALITY. I HATE THIS PARADOX AND WISH I COULD MAKE ART ABOUT IT. STOP WISHING YOU FUCKING ASSHOLE AND JUST DO IT. GOD DAMN I AM SICK OF YOU. LEAVE ME ALONE.
The more I write this post, the more I feel like I sink into the abyss…the more I become a victim. I’m SO FUCKING TIRED OF THIS SHIT. I AM DONE I AM DONE I AM DONE. I DON’T WANT TO BE A VICTIM ANYMORE IT’S FUCKING BULLSHIT.
I feel like I’m just a meat sack being flung back and forth between two extreme beings who really don’t give a shit about me. They’re like predators… just playing with their prey. Gotta save that meat sack somehow. There’s a soul in there somewhere. Sometimes it’s almost like I have access to it…but I never know what to fucking use my energy for when I have it.
As an old guy looking back, I can tell you we all have the same vivid sense of elation and depression haunting every day that we live. Have we done enough — Why can’t we do more? Relax. There’s lots of time to work it all out. Take it as it comes. Don’t worry so much about where you’re going. Enjoy where you are. “Go with the flow and ride with the tide.”
In the process of writing a long reflection on today being 5 years since my dad’s death, I decided to look up one of my old blog posts from 2013 entitled “Restless,” in which he wrote a comment I didn’t actually read until a year or so after he died. It wrecked me then, and it very appropriately wrecked me again today. For some context, this post was written when I had just started to pursue a career in animation but was feeling horrible because art already felt like a “job” to me, just from the minimal freelance I had done. I was feeling absolutely stuck, and I came to the stunning realization that I didn’t know how to balance my life and that something must be seriously wrong with me. HILARIOUS. I wish I could go back to 24 year old me and tell her “It’s ok, you’re just bipolar! Watch these videos! Read these things! Start working on it now!”
In that post, I mentioned this podcast about Andrew Forsthoefel, a 23 year old kid who walked across America, and how jealous I was that he had gone on a true adventure that changed him forever. I felt like I was missing out and wanted to see the world, meet new people and hear their stories. It’s not like I’ve walked across America, but I have gone on some serious life changing adventures since then. When writing that post, I never in a million years could’ve guessed that I’d get married in Hawaii, meet Mother Ayahuasca in Peru, or sail through Drake’s Passage and have a chance to cruise around Antarctica. I also really have met tons of interesting people all around the world with amazing stories who have shown me that living an alternative lifestyle is possible, and that there can be another way to live your life.
But even after all the life I’ve already lived… This wise message from the great beyond will always bring tears to my eyes. Because life IS overwhelming, and no matter how much cool shit I do, no matter how much inner peace I manage to attain at times, I feel like that pressure to do it all will never quite go away. That feeling of needing to rush things because I always feel behind. And it’s because we’re human. And we die. Everything we are inevitably turns to dust. His words are validating, inspiring, and enlightening all at once. Reading a message like this at exactly the right time is proof that my dad’s spirit will always be here to guide me, and a deep reminder of the importance of learning to let go and live in the moment. When you think about it, that’s really the best option we’ve got.
This is GREAT! I love your commentary and all the heartfelt responses you received. I heard the same “This American Life” episode, and I was also touched by his discoveries.
It reminded me of one night when I was sitting at a Winchell’s in Santa Ana in the early 80s, innocently drinking coffee and eating donuts. A guy in his mid-20s came in with a big grin wearing a cowboy hat, and he looked at me and said, “I just walked across the US, from the East Coast to California. Now, here I am!” I said, “Wow, your feet must be tired.”
He was a cool guy, and the crowd in the shop was happy to hear what he had to say. He represented all of us who listened to his stories. Everyone wished they could have done the same thing. Actually, many of us HAVE done similar things. Life is a fantastic adventure that never ceases to amaze us. We make plans, but more often LIFE leads us into directions we never expected. The best we can do is be ready for whatever happens. Always be prepared to “go with the flow and ride with the tide.”
You have a wonderful list of goals and I hope you can accomplish them all, plus many more you haven’t thought of yet. Remember, you are in this for the long-haul. You might feel desperate to prove yourself and experience the whole world immediately. I’ve felt the same way, and I’ve criss-crossed this country several times, and visited other countries as well. It’s a fantastic planet and you have plenty of time to explore it.
As an old guy looking back, I can tell you we all have the same vivid sense of elation and depression haunting every day that we live. Have we done enough — Why can’t we do more? Relax. There’s lots of time to work it all out. Take it as it comes.
On my blog about my life 40 years ago, my younger self is always fretting about how nothing happens fast enough. Of all the entries so far, maybe this would be of interest to you:
Don’t worry so much about where you’re going. Enjoy where you are.“
My dad had a blog he called True Time Travel Tales where he archived this journal my aunt returned to him from a trip around the country that he went on when he was 18 years old. I always meant to read it but never got around to it because I always found myself “busy” with something else. Then, after he died, I felt so guilty that I hadn’t been able to talk to him about it when he was alive I just couldn’t bring myself to read it. But then at one point shortly after his death I noticed there were a ton of broken images and contacted the hosting site to make sure they got it back up. Now, years later, I still haven’t read the blog, and again there are tons of broken images. Upon clicking that link, I had a straight up panic attack. I started shaking and couldn’t breathe, and completely lost it when I found out that the hosting site he had used no longer existed. The first time I had got the site back up, I vowed to myself I would save all the photos before this happened… but again… never got around to it… and now they’re gone forever.
My mom has a serious hoarding problem that was awful to grow up with, even getting to the point where me and my dad wanted to see if we could get her on the Hoarders show. When I was a kid I didn’t really understand it… I just thought we lived in a messy house. But as I got older and started seeing the hoarding tendencies within myself, it became clear to me that hoarding physical items represents underlying emotional issues of not being able to let go and move forward. Fears of the temporary nature of life and the inevitability that you and everyone you love are someday going to die. I’m not as bad as my mom, but I do take thousands and thousands of photos because my memory is so terrible and I find myself desperately clinging to certain moments of my life and not wanting them to disappear. I often have nightmares about losing all these photos somehow — in a fire, in a flood, in a zombie apocalypse, accidentally spilling water on my hard drives… I know this actually does happen to some people, which Eddy would constantly remind me of and make me more upset. Until today.
Clicking on that link in my dad’s comment was beyond upsetting. I cried and cried and cried. In a way it felt like losing him all over again… losing these parts of him that I really truly wanted to discover, but again, being so caught up in myself that I never found the time. Familiar guilt and shame crept back in, and I felt myself grieving like I had in the beginning. I thought I had come so far and healed so much, yet the wound felt as raw as ever.
But then Eddy reminded me that this is basically like my worst nightmare… and now that it’s happened in this capacity, I should see that it’s ultimately fine. I’m still alive, I still have the memories of my dad, and life will go on. He also reminded me that my dad was never the type to cling to photos or physical objects. He was throwing things out all the time! In fact, the whole reason he made the site was because he had thrown out this journal years ago, and somehow a man found it and tracked down my aunt who had returned to him. Considering he was already sick and died 2 years after he made this blog, he was no doubt already feeling the need to reflect on his life somehow. He was never the type to hoard, and he was especially put off by my mom and would always try to throw out her garbage because he knew she never would.
When my dad died, I looked frantically for this journal because I wanted it so badly, but me and my mom discovered that he had already thrown out most of his things. It became clear that he had planned his death, and in the beginning I was super angry at him for not leaving behind any of this stuff for me, or even a note explaining himself. I suppose he thought I wouldn’t care… and it’s taken me a while to get over the idea that I should’ve just asked him… that I should’ve shown some interest while he was still around. All these familiar feelings of self hatred and regret came back today when I found out his hosting went down, until Eddy talked some sense into me and reminded me what kind of person my dad was. How he was never the type to hold onto things and wouldn’t expect me to either. He would want me to just keep moving forward and enjoying life…
So when I came back to my senses and actually read the post he had linked to me, I couldn’t help but laugh. Even though the image was broken, it was literally just a blank page. Just like life. Just like this moment. He said that he wanted to preserve the beauty of the page before adding his thoughts onto it. It’s just like him to make this sort of point… and I started to see that this is an incredibly important lesson for me to learn. Even though he’s no longer around, he will always be here guiding me, helping me break through these walls that are such a natural part of the human condition.
We as humans can’t help but be so deeply affected by mortality. I felt so terrible losing these photos that I know he had thrown out. There was a time years ago that I started to try and save all the photos on each of his entries, but it took so long I couldn’t see myself doing it for the whole year. I also see that a bunch of videos he had posted have already been taken down… which really hurt in the beginning, but thinking about it logically… that’s just the nature of the internet. All this important stuff is just located on the cloud, and once it’s gone… it’s gone. This was a way for him to reflect on his life when he knew he didn’t have much longer in this world, and I have to just be grateful that he at least created this website and I have his words to reflect back on. And stop thinking that losing all of this was my fault…
In the end, all we are is dust in the wind. Just because these images are gone doesn’t mean he didn’t live a rich life, and it doesn’t mean he’s no longer my dad. Life is just a series of moments and experiences, and the best we can do is live in the present and enjoy where we are. And if something is important to you… don’t WAIT like I did, or it may be too late. I am so sick of waiting, of avoiding, of thinking “I’ll do that thing tomorrow” and never getting around to it, the weight getting heavier and heavier… JUST DO IT ALREADY.
A fantastic reminder for a 5 year death anniversary. Thanks, dad. Maybe now I can truly listen to your advice. Everything does indeed happen for a reason… lesson learned. All of this will be over before we know it. Perspective is such a trip.
I close my eyes Only for a moment, and the moment’s gone All my dreams Pass before my eyes, a curiosity
Dust in the wind All they are is dust in the wind
Same old song Just a drop of water in an endless sea All we do Crumbles to the ground, though we refuse to see
Dust in the wind All we are is dust in the wind
Now, don’t hang on Nothin’ lasts forever but the earth and sky It slips away And all your money won’t another minute buy
So far, being off meds for me is about trust. You have to recognize that you’re in a depressive low, accept that this is just part of you, and learn how to be ok with it. Don’t allow the negative thoughts to take over, like “I’m never gonna finish that thing I’m working on!” Because even though it seems so simple…that’s referencing the FUTURE. And the future is ALWAYS unknown. We think by worrying, we’re predicting some terrible outcome to prevent that outcome actually happening. Isn’t that psychotic?
Rather than do that, we gotta just live in the present. And listening to your intuition is SO important because THAT’S what you have to trust. First of all, if you know that worrying so much about a thing will help you get it done, then you WILL get it done. So why not just take out the worrying and live in the present, enjoying life instead?! Just TRUST that everything will be ok. Because it will be. It’s ridiculous.
I feel like I’ve somehow known all of this for a while but am also just learning it now.
Today I was relaxing in the park looking around at people also relaxing at the park…just literally sitting there and doing nothing…and I’m like “why did I always think every single person around me was doing such amazing things everyday?” My jealousy and FOMO used to be the WORST! It really is only now because of the quarantine that I’m realizing that I actually CAN be satisfied with my life.
I was telling Eddy that being home so much reminds me of being a kid before I knew how to drive. I used to be frustrated at how distracted I was by the world and people around me saying “I wish I could go to back to before I had any friends!” Simply meaning…to a simpler time when I felt less obligations to the people around me. THIS IS IT. And it really isn’t bad. I’m learning so much about myself and realizing…all of this is an EXPERIENCE!! So why not savor that experience? That’s what I’m trying to do now, and my old self is slightly resisting but not by much…
Last week on July 15 (wow it was only last week?! Feels like an eternity…) I went to the ER for what I THOUGHT was a panic attack, but it turns out was actually a really messed up side effect of the meds (Latuda 60mg) that I was on. Been off it since, and feeling pretty good! Today is my first mild depressive episode but it’s not so bad 🙂
Anyway, this is what happened. Around 9pm on July 15 I took the Latuda and almost immediately felt like something had shifted within me — it came with dizziness and blurred vision. About a week leading up to this, I’d felt pretty off when I took the meds, but brushed it off as drowsiness that was common with the Latuda and would just immediately go to sleep.
I tried doing the same that night, but when I lay down, I could tell something was very wrong. I can’t really explain it but my perception had totally shifted and I felt like I was in a void. The shadows in the room looked off in a strange way which freaked me out, I didn’t feel comfortable breathing to calm myself down, and the worst part about it was that MY EYELIDS HAD STARTED SHAKING and just wouldn’t stop, making sleep (and even meditation) impossible. I lay there trying to calm myself down for about an hour, hoping the eyelid shake would go away, hoping I would drift off to sleep somehow, but then my arms and legs started to shake too and I was WAY too uncomfortable. My thought patterns were off too… I wondered if it was anxiety but my mind was like void of thoughts…I was freaking out but felt it in my BODY…hard to describe, but I was scared. I wondered if I was having a psychotic episode. I wondered if I would be like this forever. I wondered if I would die.
Finally I decided to get up and tell Eddy about it, and he immediately thought it was an anxiety attack. When I tried to talk to him I realized I couldn’t speak correctly, and it was hard to walk because everything was shaking and I felt so restless. I told him it might be a side effect of the medication, and he helped me induce vomiting to try and get the medicine out of my system. When I didn’t feel better afterwards, I agreed with him that it must be anxiety, and he tried putting a movie on to calm me down. It was impossible to focus my eyes on anything though, and the “void” feeling within me was so disconcerting I couldn’t help feeling hopeless.
After about 3 hours of Eddy trying to calm me down, me going back and forth from trying to throw up, to my room to try and sleep, and back out to just be around Eddy because I was so upset, nothing got better. It was like a bad trip, but WORSE because I HONESTLY DIDN’T KNOW IF IT WOULD EVER END. Trips have arcs, but this was just the SAME for HOURS. Eventually I said we needed to go to the ER because I knew I needed to go to sleep and as long as my eyes and body were shaking I wouldn’t be able to.
The ER of course had no idea what was wrong with me, but wrote it off as anxiety and after X-Raying my chest and testing my heart with everything normal, they gave me an Atavan to sedate me THANK GOD. It was torture going to the ER with COVID going on right now, and having to wait while my whole body was shaking and I was in a strange pulsating blurry void. Thankfully it worked and I was able to go to sleep. I still felt a little weird the next day and for the next couple days, but I had mostly reset.
This whole experience was probably one of the most terrifying things I’ve ever gone through, because somewhere deep in my heart I felt like it was never going to end. Even though Eddy and the ER said it was anxiety, I also somehow knew that it was most likely the meds. I immediately got off of them because I was so afraid of it happening again, but also avoided looking up side effects because I was so shaken… A couple days later when I thought about going on my meds again and finally looked it up.
“High doses or long-term use of lurasidone (Latuda) can cause a serious movement disorder that may not be reversible. Symptoms of this disorder include uncontrollable muscle movements of your lips, tongue, eyes, face, arms, or legs. The longer you take lurasidone, the more likely you are to develop a serious movement disorder.”
I saw this and got SO UPSET. “A serious movement disorder that may not be reversible”?!?! So I COULD’VE TOTALLY BEEN STUCK THAT WAY!! Upon looking into it further, I found out that antipsychotics cause this condition called “tardive dyskinesia” which causes involuntary movements in your body…EXACTLY what I was experiencing. When I talked to my psychiatrist, she said it used to be more common with older antipsychotics and it’s rarer with Latuda because it’s newer. So that’s why she didn’t TELL ME?! There’s a huge problem when this has been a common occurrence with this medicine which I read, tends to happen typically after being on it for 3 months.
Why, after 3 months, does it become more common to develop tardive dyskinesia?! THIS SHIT IS SOOOO DANGEROUS!! I CAN’T BELIEVE I WAS EVEN TAKING IT!! If I had been on that medication longer (this was the first time I had stuck with it consistently for 5 months), it more likely WOULD’VE been permanent! The thought of being STUCK that way is completely TERRIFYING!! I’m so grateful it happened to me early on, almost as if to say “get off this shit, it’s BAD for you.”
NO ONE SHOULD TAKE LATUDA. IT IS DANGEROUS.
But I suppose any pharmaceutical drugs are dangerous…which is why these side effects even exist. It’s so sad that we live in a world we do many people have to take these dangerous things, in many cases having to actually LIVE with these horrible side effects in order to control their mind. It pisses me off really… this MODERN WORLD. So many people are suffering!!
I used to think I was invincible, that side effects would never happen to me. Which is partly why I didn’t really take them seriously. Yes I looked up the side effects when I started Latuda, but didn’t think much of them because I figured they wouldn’t affect me. I was wrong. And I’ve learned an important lesson. Even looking at the rest of the side effects…that night I experienced so many of them:
mask-like facial expression
inability to keep still
very stiff (rigid) muscles, sweating, confusion, tremors, feeling like you might pass out, or
twitching or uncontrollable movements of your eyes, lips, tongue, face, arms, or legs
After I spoke to my psychiatrist about this she prescribed me Lamictal, but honestly I don’t want to be on meds anymore. Yes my depression and suicidal ideation can get pretty bad and I can have rapid cycling mood swings. Although it’s hard to deal with, I feel like it’s not NECESSARY for me to be on meds…especially because now I’m just so damn scared of them.
This trip to the ER dramatically shifted something in me. It felt like a sign of a death that needed to happen. Originally Eddy was telling me he thought it was anxiety because there was so much going on in my life.
I finished my Kundalini Yoga Teacher Training program online last month, and because I was having a hard time balancing working from home in quarantine, and because I had taken on 2 life coaching clients and wanted to focus on art and my comic, I had decided I no longer wanted to certify to become a Kundalini Yoga Teacher. However, I did so well in my practicum during our last session that Jen told me to reconsider certifying. I did for a moment, but backed out again when we were supposed to pick our time slots, and this time Mary tried convincing me to do it. At this point I could tell maybe this was just an old pattern of me trying to run away out of fear and avoidance, and since I had been doing this program for 10 months, sure I might as well do it.
But agreeing to design 6 classes to get up and teach sent me into manic “final exam” mode, and not only that I got way too excited about trying to launch my brand/healing program “Hasthira” with the onset of my classes. This meant me trying to get a flyer done along with a website, of which I had none of the art I wanted to do completed. I didn’t realize what I was doing to myself, the pressure I was putting on myself…that was all just coming from me. I succumbed to really unhealthy habits of trying to do way too much, so really this incident seemed like it was trying to also teach me to learn how to chill out, rest and take care of myself. Before I found out about tardive dyskinesia, I was even wondering if it was a cause of the meds suppressing my mania that was activated by all the work I had to do. But now I see that…yeah maybe this all happened as a sign from the universe to A) Stop pressuring myself so much and B) Get off the meds.
When I recounted all of this to yoga mama Jen at our sound lesson last Sunday, she gave me a wonderful exercise about dealing with pressure. She told me to get all of that pressure out on paper, and have that physical representation of it so that whenever I feel the pressure, to look at that paper and know it’s THERE, not inside me — to separate myself from it in that way. I haven’t done it yet because breaking down to Jen really felt like the release I needed to get rid of it, at least in that moment.
Jen also told me that she helps people get off their meds, and that if I really wanna get off, I need to become really aware of all my mood changes and behaviors, to know how to handle them when they come up. She also told me I need to really watch my diet, because bad food like junk and fast food will flare up the mood shifts, so she suggested doing her 40 Days To Optimal Program for the second time, which I AM doing. She also said if it gets bad again, she has supplements to give me that she thinks might help. It was so amazing to get this type of support…and I feel really good about doing this.
I started this blog because I didn’t want to be on meds, and I wanted to become more aware of my moods, to do just what Jen was talking about. So much has happened since then, and this Kundalini Yoga Teacher Training program has really changed my life in ways I could’ve never expected. It’s shown me how important Kundalini Yoga is in my life — how it has helped me reconnect to myself and find a middle ground and stillness within me that I never thought was possible. If I’m vigilant about my practice, no matter what mood I’m in…I know I’ll be ok. The program has also shown me the importance of community, and what a great community even looks like. Through The Yogi Tree I’ve found my tribe — Jen has really cultivated a beautiful safe space where it’s okay to be vulnerable, where you can experience the waves of life and express them and be loved and accepted for it…having a space like that has truly changed my life, and I wish everyone could experience something similar, especially those struggling with mental health.
This post is already a novel,but again this was long overdue. I’m so grateful for this quarantine space to do the work I’m doing, and so grateful that I am still alive and well after such a terrifying incident. Upon reading reviews of Latuda, I’ve found tons of similar accounts, and my heart goes out to everyone suffering from these horrific side effects just to try and get by in this world. Really hoping these alternatives I’ve found work for me in the long run…gonna make a deeper effort than I ever have.
Side note: I taught my first Kundalini Yoga class yesterday for certification! 5 more to go!! 😀 I was so manic trying to prepare and write the series, and it was such a high to finish teaching my first one that today I’m experiencing a crash from it…but it’s not so bad. Just gonna try and take it easy, which is hard for me to do. But I’m determined to learn how to relax! Survival depends on it!
Anyway, here’s the flyer with details for my online Kundalini classes, just in case you’re interested! I live in Southern California so the time zone is PST!